by Michael Wells
Wow! What a day; it turned out to be a good day in fact, a very Good Friday!!! Brady started his day with a negative reaction to all the morphine he’s been receiving; not a pleasant thing to experience. He basically started to “cold turkey” and all I can say is; Wow very awful to see and I cannot imagine just how he must have felt. He was thrashing around on the verge of a seizure.
But after more morphine and ativan (an antidepressant) he finally settled down and slept the afternoon away. He just woke up and is enjoying a bottle. He looks much better than he has for the past 5 days and while he has a pleasant pink glow to his complexion it is a thousand times better than the nasty rash which he had and most likely still does on most of his body.
I guess the steroids are doing the trick; I really don’t know and I sincerely don’t care I just want our baby back. His doctors believe (guessing) that Brady had a bad reaction to one of his numerous antibiotics – Cefepime as opposed to engraftment syndrome or slap cheek disease. I truly believe they really don’t know and are continuing to guess their way to a fix.
Regardless, there is still even better news; Brady’s white blood count this morning was at 0.8 up from yesterday’s 0.3 and hopefully on its way to a “full” recovery.
Sherrie and Grandma Jan are on their way home for some absolutely much needed rest. It’s been an overwhelming week and these 2 ladies have more than earned a couple of days off. So, until Easter Sunday, it’s a return to the “Man Cave.” I can only hope that Brady will continue to recover and/or I have the strength to handle this. Either way please over this, the Holiest of Christian Holidays continue with all the prayers, hugs and good thoughts you can spare as Brady is still very much in need.
PS Brady’s next door neighbor; Jimmy just stopped by to say hell-o. He is doing incredibly well with his white blood count soaring to 164. Great numbers for a truly Great Kid!!!
“8 Years Later—Still No Cure for Pediatric Cancer” is a series of posts revisiting the journal kept by Sherrie and Michael Wells during the cancer diagnosis and treatment of their son, Brady Michael. Hopefully these entires will provide an understanding of the journey families face when dealing with these horrific diseases and of the important work the Hugs for Brady Foundation does.