07/03/2010
by Michael Wells It’s late Friday night or early Saturday morning depending upon your frame of reference. It was another day of wait and see. I hate this disease and the absolute destruction it causes. I want my baby back the way he was more than I have ever wanted anything in my life. It’s just takes over every aspect of your entire world and challenges you every single moment it exist. Pure evil is my only definition for it. Enough venting; Brady is just about as remarkable a child as any parent could ever ask for. Every day he continues to develop his intelligence at an amazing rate. His vocabulary is growing exponentially and it’s just adorable to listen to him say things like; trash, rubbish and garbage. As he shows you he knows the meaning of each word. His wagon ride routines are equally adorable. He will instruct you as to which stuffed animals are going in his wagon, which hat he is going to wear, make sure you have his ba-ba in the cup holder and God forbid you forget to give him his surgical mask he will set you straight very quickly. He also now instructs you exactly where he wants to walk too. He’s just a beautiful baby and such a wonderful part of my life. Brady continues to be weaned off of steroids and in the next 3-4 days we will have a very good idea of whether or not we will be able to proceed with the donor lymphocyte transfusion (DLT). It is critical for Brady to have this procedure and as each day passes my anxiety increases at an insomniac rate. It’s so important. Brady’s vitals continue to be “good” and we are headed in the right direction for the DLT in mid July. Just pray nothing changes. Sherrie went home for the second night in hopes of getting some much needed rest. She is just such a wonderful mother and an amazing wife, I miss her. Finally, before I ramble on forever; there are so many people to thank, I don’t know where to begin. I will get my act together here and make sure that everyone one who has donated to the Hugs for Brady Foundation gets recognized. Your generosity is so appreciated. Sherrie and I had a 3 hour meeting with the Robert Wood Foundation Friday afternoon mapping out a rough game plan trying to determine where the money can best be used to help kids with cancer. Thank you for your kindness. Finally, the hospital is in need of platelet and blood donations, so if you can please donate. I donated platelets yesterday and believe me it’s no big deal, just a little time consuming. So, I guess I should try to get some sleep. Until next time; please continue to pray, hug and think wonderful thoughts as it’s all we have right now! PS Happy Birthday – sister, Kathy and brother, Jimmy!“8 Years Later—Still No Cure for Pediatric Cancer” is a series of posts revisiting the journal kept by Sherrie and Michael Wells during the cancer diagnosis and treatment of their son, Brady Michael. Hopefully these entires will provide an understanding of the journey families face when dealing with these horrific diseases and of the important work the Hugs for Brady Foundation does.