by Michael Wells
Saturday morning and Brady is about as bored as a 14 month old toddler can get. He has been in his room for more than 2 weeks and he has a bad case of cabin fever. I am working the doctors, nurses and anyone else to try and get him a few hours of freedom. I have been told they are working on it. So, let’s see.
Brady slept through the night and is in more or less in a good state of mind. I’m trying to get him to take a nap and I don’t think he is much inclined to do so. We are watching Baby Einstein videos for about the millionth time – he will not let me turn the DVD player off. He loves them.
Sherrie is home and of course running errands and doing the things one must do to keep their life in order. She should be back late this afternoon. Brady is sitting in his crib chewing on one of his stuffed animals and the minute I tell him to stop he does but the moment I turn my back he starts chewing immediately. I think he’s testing me and I am failing…
Dr. Drachtman is the attending physician this week-end so it will be interesting to what he has to say about Brady being allowed to go for a walk. No, will not be an acceptable answer. I think he’s trying to avoid me but I will track him down!
Brady is finally napping and I am listening to Pandora radio station on my headphones and surfing the net for whatever. I don’t think we’ll be able to go for a walk – no results back from where-ever regarding Brady’s mysterious H1N1 / Chicken Pox. Oh well, I’ll keep trying anyway!
Not too much else to say regarding Brady’s health; Monday will be the acid test regarding whether or not this cancer is in remission. The biopsy results will dictate exactly how we will proceed; home or chemo. It’s that simple and that upsetting all at the same time. Dr. Drachtman is going to perform the biopsy at 7:30am so we should have the results before noon. I cannot begin to explain the anxiety this is causing but it’s something I have deal with and something which is all part of treating AML. It just is not a very pleasant scenario and one I don’t believe I will ever come to terms with. Bottom line is: Leukemia Sucks!
I’m going to try and take a shower before my Bear stirs so until next time; Keep Brady in your thoughts, prayers and hugs – especially for Monday!
The Rollercoaster Ride Continues but it Gets Much Better!
Today’s blood count: White Blood 2,200; Red Blood Count 3,400; Platelets are 112,000. This is excellent but the GOOD no make it GREAT NEWS is blasts are 2.0%!!! If this is confirmed on Monday with the bone marrow biopsy Brady’s cancer is in REMISSION!
“8 Years Later—Still No Cure for Pediatric Cancer” is a series of posts revisiting the journal kept by Sherrie and Michael Wells during the cancer diagnosis and treatment of their son, Brady Michael. Hopefully these entires will provide an understanding of the journey families face when dealing with these horrific diseases and of the important work the Hugs for Brady Foundation does.
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