06/30/2010 by Michael Wells A very short entry; Brady had a wonderful Tuesday. He played, went for walks in his wagon from the time he woke up until almost 2:00pm when he napped until 8:00pm. He finally woke up; he was in just great spirits. Brady while still puffy from the steroids was in great… [Read More]
June Journal Entries
8 Years Later—Still No Cure for Pediatric Cancer – 188
06/29/2010 by Michael Wells We went to CHOP yesterday. We rode in a small cramped ambulance with a driver who actually got lost on the way. The 90 minute trip took almost 3 hours! The attendant who sat in the back had such bad body odor; I thought I was going to pass out. All… [Read More]
8 Years Later—Still No Cure for Pediatric Cancer – 187
06/27/2010 by Michael Wells Sunday is just about over and it’s a very good thing. Brady has a very difficult Saturday night followed by an even more excruciating Sunday morning. His temperature continued to spike up to 103.4˚ and no one seems to have an answer as to, “why.” He has been given different antibiotics… [Read More]
8 Years Later—Still No Cure for Pediatric Cancer – 186
06/26/2010 by Michael Wells Brady had a relatively good night; he only spiked at 103 once and slept through most of the night. This morning we walked and walked and walked some more. He absolutely loves to be in motion. He has a set routine; he must wear his shoes and socks, he must select… [Read More]
8 Years Later—Still No Cure for Pediatric Cancer – 185
06/25/2010 by Michael Wells I woke up this morning and realized I had no mentioned a couple of wonderful events which occurred yesterday. First, Brian Ceralo (Jackie’s Dad) came to the hospital last night to introduce us to Joe and Maryann of Edison. Joe and Maryann are professional “healers” who believe in the power of… [Read More]
8 Years Later—Still No Cure for Pediatric Cancer – 184
06/24/2010 by Michael Wells Today was another day of an emotional roller coaster. Brady slept a good portion of the morning as he continues to be febrile as his temperature bounced around 102˚ all day long. Sherrie and I managed to have our conference call with Dr. Bunin and as a result we are scheduled… [Read More]
8 Years Later—Still No Cure for Pediatric Cancer – 183
06/23/2010 by Michael Wells Today, June 23rd started our just wonderful. Brady’s blood counts were all in the “right” direction and Nurse Practitioner, Donna told us Brady’s blood was once again O+ as opposed to A+. All signs pointed to nothing but excellent bone marrow biopsy (BMB) results. His BMB procedure went extremely well and… [Read More]
8 Years Later—Still No Cure for Pediatric Cancer – 182
06/22/2010 by Sherrie Wells This morning Brady had a 102.2 fever. He is being treated with antibiotics and Tylenol. He was monitored closely throughout the night, which was very rough for him. He has a hard time getting comfortable as he now has several wires connected to his chest, a pulse ox on his toe,… [Read More]
8 Years Later—Still No Cure for Pediatric Cancer – 181
06/21/2010 by Michael Wells Today was the tale of 2 Brady’s. It was the best of times and it was well, the worst of times. First, the good; Sherrie told me, he had a hearty breakfast, he played with all his toys, he told her, that he wanted to go for a wagon ride and… [Read More]
8 Years Later—Still No Cure for Pediatric Cancer – 180
06/20/2010 by Sherrie Wells I was just pulling into my driveway this evening and I realized how lucky I was for so many reasons. Michael and I were able to get some quiet time alone while “Grammy and Grandpa” watched Brady. I think the three of them had a lot of fun together. And I… [Read More]
8 Years Later—Still No Cure for Pediatric Cancer – 179
06/19/2010 by Michael Wells Happy Father’s Day I am one of the luckiest dads in the world. I have 3 wonderful children and I am very proud of each of them. Wishing each and every Dad a day which is only surpassed by that day in May a Happy Dad’s Day! After all, we do… [Read More]
8 Years Later—Still No Cure for Pediatric Cancer – 178
06/18/2010 by Michael Wells The “Man Cave” is in full swing. I swear his room even takes on the odor of a college dorm the minute his Mom leaves. Brady and I walked as far as we could; to the courtyard, the PSE&G fish tank, the fountain outside and of course around the unit several… [Read More]
8 Years Later—Still No Cure for Pediatric Cancer – 177
06/17/2010 by Michael Wells Thursday nights are late nights for me at my office. I arrived at the hospital around 8:00pm just in time to go for our evening walk. Brady was in wonderful spirits and it was extremely encouraging to see him almost back to his “normal” self. Sherrie is exhausted as she managed… [Read More]
8 Years Later—Still No Cure for Pediatric Cancer – 176
06/16/2010 by Michael Wells Yesterday, I didn’t get to spend much time with Brady. Sherrie and I attended Christian’s funeral which was held about an hour from the hospital. Grandma was kind enough to stay with Brady while we paid our respects to Lori and Ray, (Christian’s Mom & Dad). The funeral home was overflowing… [Read More]
8 Years Later—Still No Cure for Pediatric Cancer – 175
06/14/2010 by Michael Wells Just a brief entry today as I want to get to my office early. Brady is doing as well as expected; his chemo is completed and now it’s the very difficult task of waiting. On the positive side, his white blood count is at 0.10 which is the lowest that can… [Read More]
8 Years Later—Still No Cure for Pediatric Cancer – 174
06/12/2010 by Michael Wells Saturday was a wonderfully uneventful day. Brady’s cbc continues to head in the right direction with his white blood count now at 200 (normal range is: 5,000 to 10,000) and thus he is extremely neutropenic which is exactly what we all want. He is still on steroids and this is causing… [Read More]
8 Years Later—Still No Cure for Pediatric Cancer – 173
06/11/2010 by Michael Wells Yesterday, Brady’s blood counts continued to diminish. He is extremely neutropenic and I never thought I’d be saying I couldn’t be happier. You see, the very first step in Brady recovery must be the destruction of all his bone marrow blood cells. The chemo must kill all his red, white and… [Read More]
8 Years Later—Still No Cure for Pediatric Cancer – 172
06/10/2010 by Michael Wells A very short update; Brady’s ANC is 418 which means he is now neutropenic and hopefully his is a good sign the chemo is beginning to work. He’s sleeping now and every once and awhile calls out in his sleep; “MaMa” it’s really very touching. Finally and most importantly; please keep… [Read More]
8 Years Later—Still No Cure for Pediatric Cancer – 171
06/09/2010 by Michael Wells 9:45am – Brady managed to get through the night without any major complications. He received both the Clofarabine and the Cytarabine chemo drugs. He is resting and I think he will be sleeping a good portion of the day. For the intellectuals the following are brief summaries of the 2 principal… [Read More]
8 Years Later—Still No Cure for Pediatric Cancer – 170
06/08/2010 by Michael Wells Oh what a day! After 3 different chemo protocols were presented to us, Brady medical team has decided on the following drugs: Clofarabine and Cytarabine. Brady has been given the Cytarabine before but the Clofarabine is new to him and is some real nasty stuff. Brady will be receiving his Chemo… [Read More]
8 Years Later—Still No Cure for Pediatric Cancer – 169
06/07/2010 by Michael Wells Sunday was a much better day than Saturday. Brady had his personality back and was doing fairly well most of the day. His temperature was in the “normal” range and he did not require any additional IVs. All was going well until 7:00pm then his temperature once again spiked to 103.5˚… [Read More]
8 Years Later—Still No Cure for Pediatric Cancer – 168
06/05/2010 by Michael Wells It’s after 2:00am and what a surprise, I can’t sleep. Brady’s temperature just hit 103.4° and I just gave him some Tylenol. It’s extremely difficult to stay off what my sister Kathy calls, “the pity potty” as all I can think of is: WHY? We had 72 days of Brady in… [Read More]
8 Years Later—Still No Cure for Pediatric Cancer – 167
06/04/2010 by Michael Wells Hospitals are strange and sad places in the middle of the night. Brady continues to spike temperatures (102.4°) followed by Tylenol and a few hours of comfort. His medical team still has no idea of what is causing these temps but until he is no longer febrile he is staying in… [Read More]
8 Years Later—Still No Cure for Pediatric Cancer – 166
06/03/2010 by Michael Wells I just arrived at the hospital, worked late tonight and finally got here. Brady is fussing a bit; damn temperature keeps bouncing around like a basketball. He’s trying to get to sleep but it’s apparent he’s a little uncomfortable. I sent Sherrie home for the night; she really needs to get… [Read More]
8 Years Later—Still No Cure for Pediatric Cancer – 165
06/01/2010 by Michael Wells I just got home from the hospital and unfortunately not much has changed. Brady continues to spike temperatures and continues to recover quickly once given some Tylenol. Still no cause for the temperatures as blood work testing continues. He will be in the hospital tomorrow and most likely for another night…. [Read More]